My dear friend Janelle, A Kick to the Neck, is in the ICU due to a brain aneurysm. This post is dedicated to keeping her friends updated about her status.
Her friend H used to have access to her blog to post updates, which J would want, but we can’t access the site. I am hoping to reach some readers that read both of our blogs.
Please pray for her, send her positive thoughts, love, and energy!
(Most current update listed first).
I apologize I have not posted the past couple of updates. This is the most recent. For the two other updates I did not post please visit Js site at A Kick to the Neck
UPDATE: January 30th (QLD)/January 29th (USA)
We are so very sorry we have not updated in the past couple of days. It seems that so much has happened so quickly.
Yesterday (Thursday Aussie time) Janelle had her brain surgery. It took 3 hours and 7 minutes – she did very well. She told the doctor before the surgery that if he killed her she would haunt him. Now that is our J – HA!
The tumor has been zapped. I am sorry that is not very technical but it is the best way I know how to explain. Although the tumor is dead she still has cancer cells therefore will continue treatment. HOWEVER, her cancer markers are way down. She will need to continue chemo treatment but it seems she could be very close to going into remission. **FINGERS & TOES CROSSED**
She had a minor seizure after the surgery however it was only a result of the swelling in her brain not related to the tumor or aneurysm. She should no longer have the seizures as the pressure in her brain reduces, as it is expected to do. The docs gave her a shot of steroids and although her head will hurt for a couple of weeks she will be fine.
To my surprise Janelle called me just a few hours after the surgery. Her eyes are going to bug out of her head when she sees her phone bill – she does not realize that I am so far away. When I tried to explain why I was not there she informed me that I could swim or take the bus. I had a giggle – although I do very much wish I could be there with her.
She is still struggling with some words. As she says, her words are stuck in her mouth. This will improve over the course of time as her brain continues to heal. Her memory & reasoning has not completely restored just yet. My conversations with her have been very specific as she reiterates why she fought hard to get better. She is very fond of my son and talks about him a lot. She specifically stated that she never gave up. She is happy to be alive. She has been very descriptive about certain things while she can’t quite remember others. I told her that hearing her voice made me smile and she said that she was smiling too on the inside. It made me happy to know that she is feeling some happiness in all of this.
The doctors will be watching her physical & cognitive skills closely. Again, her memory and reasoning skills will improve as the pressure in her brain reduces.
She let me know that she does not like eggs. When I asked her how she felt about chicken today she said she was not sure. Again I had a little giggle with her, she told me that she really wants gin, chocolate, and spinach.
She is expected to be flown back to Brisbane within the next day, given she continues the healing path that she is on.
She has a long road to recovery. I am not sure that she will be back blogging soon (she did not know that she had a blog when I mentioned it) however SHE IS ALIVE and she is a fighter. I have no doubt she will do wonderfully with recovery and be back blogging & twittering in no time.
Thank you again to everyone that has supported J during this time. I know there are many who have never met J or had an opportunity to get to know her, but as the doctor stated…She has many angels on her side…I believe those angels are everyone who has been sending prayers, love, and strength her way.
Hayley and I will continue to keep you posted until J is able to do so herself.
Thank you again for supporting such a wonderful courageous person!
Tammy
UPDATE: Monday, January 25th, 5 pm (AUS), Sunday, January 24th Midnight (USA)
This update will go back a couple of days then bring us current to the time posted on this update.
Saturday (or Sunday depending on your location), Janelle woke up mumbled a few words then fell back asleep. During that time she began bleeding from her ears which indicated that something ruptured in her brain. She was immediately taken to surgery. During the 3 hour 10 minute procedure the doctors where able to stop the bleeding my inserting a balloon in the artery.
In recovery she was on a breathing machine. Early this morning she began coughing and breathing on her own so the docs took her off the ventilator. A short time after that during one of her routine checkups she woke up; asking for a chicken sandwich no less.
After the docs ran the first batch of tests Hayley was allowed to see her. Janelle responded positively & remembered who H was and who I am however she did not remember Lexie, Buffy or the fact that she is a vegan (she really enjoyed the chicken sandwich – ha!)
Janelle expressed that she was tired and wanted to rest. The nurses said NO WAY! She ended up falling asleep but the nurses were waking her every hour with ease. Her speech is slow and she has problems putting together words. The good news is her cancer markers have dropped to the lowest they have ever been, her nervous system appears to be good, and her reflexes are good.
Test results show that the headache J is complaining about is a result of cranial pressure and she is at high risk of stroke. Currently she has a 70% chance of having a stroke that she would not recover from (I won’t say or type the word but you know what I mean).
Brain scans show two parts of her brain that have fluid build up causing her to not recognize words, problems with speech, memory, and her vision.
To reduce the risk of permanent damage to her memory, speech, and chance of a stroke the doctors will be performing a procedure at 6 pm QLD time. The procedure will involve putting J in an induced coma, lowering her body temperature for 3-4 hours then slowly raising it again and bringing her out of the coma. This procedure will reduce the pressure in her brain and lower the chances of a stoke to under 10%. She will not be in pain during this procedure. The procedure will not fix the problem immediately but a huge improvement will be seen within 24 hours if it works.
Prior to all of this happening, as you know J was scheduled to have brain surgery in March to have her tumor removed. She is now on the top of that list. The doctors are merely waiting for her now. If this procedure works, she will be flown immediately to Sydney for the brain surgery.
Janelle has fought back hard against cancer and during the last 5 days. The prayers and love of her friends, strangers, and acquaintances has helped tremendously.
She has more fighting to do, Hayley & I, ask that you continue to pray and send love her way. It will be later this evening or early next morning before we have anymore updates.
We are so very happy that J woke up today now we are ready for the next stage of this fight.
I ask that you also send your positive energy to Hayley. She will have the longest 4-5 hours in that hospital waiting while J undergoes this procedure.
Thank you!
Monday, January 25th (AUS) 10:00 am/Sunday January 24th (USA) 5:oo pm
JANELLE IS AWAKE!!! Hayley and I were just working on the update from this weekend when she was paged back to J’s room and received the news that she is awake. Our vegan girl is awake and asking for a chicken sandwich. HA! The docs are with her currently running some tests. Hayley will get to go in to see her shortly!
Thank you everyone for all your prayers & love. We will keep you posted!!!
Saturday, January 23th (AUS)
(As you can imagine Hayley is exhausted so she has asked me to make this update for her. This is a combination of words from Hayley & my own.)
J has not woken up again since yesterday. She is breathing on her own but needs to wake up!
They want her to be completely conscious like yesterday!
If she is conscious and stable by Monday they are flying her to Sydney to have the tumor in her brain operated on Tuesday. Then they will fly her back to hospital here the day after. (This procedure was scheduled for March so this could be good for J since she has special b-day plans!)
She needs to be awake for it though because the nurse was explaining that patients are AWAKE during the procedure. That’s how they tell if the procedure is going well.
Her sister gave consent for the operation today but when J wakes up she can override it if she doesn’t want it to go ahead. (However, she had reconciled already that she wanted to move forward with the procedure so I would think she would give the ok.) They think that by doing it now she will have greater chance of recovery from cancer plus it decreases the risk of any more seizures or aneurysms.
Her artery is holding up well and blood is flowing easily. They’ve got a bunch of things attached to her head monitoring everything inside her head on this really cool LCD screen. She’s got a dye that is being pumped into her all the time and you can see her brain lit up like a Christmas tree. It’s really high tech and she got hooked up to that today.
The EXCELLENT NEWS is her blood tests show massive reduction in her cancer cells and she is doing really really well on that side. The brat still isn’t awake. She is responding to certain things that are being shared verbally by squeezing (our) hands.
She is doing so well…we just need her wake up. We have speculated that she may be dreaming of her favorite celebrity, Brooke Shields, and therefore not quite ready to wake.
Hayley has been reading her all the blog comments. The nurses have embraced Hayley which is good and she will be with J round the clock beginning Sunday.
Keep sending your messages and love. We will continue to keep you posted.
Thanks!
UPDATE: January 22 – QLD/January 21st USA
Hayley has brought us the good news that Janelle is awake. Just few short hours ago Janelle opened her eyes, squeezed the doctors hand with one finger, responded to his voice, then went back to sleep.
Shortly after this happened the neurosurgeon was able to determine the source of the seizures.
(Please pardon my medical ignorance as I fumble through this explanation.)
A brain angiogram revealed she has a spastic artery, a vasospasm. This is when the artery in her brain where the aneurysms were is contracting and stopping blood flow, thus causing the seizure.
The resolve is to thin out her blood, raise her blood pressure and blood volume so it flows easier through her arteries. If this does not help in the next 24 hours they will put a balloon in her artery to widen it.
She is wide awake now!!! Her eyes are open and she is holding the hand of her mom & sister. She is not yet speaking. The doctors are performing testing to determine if there is any brain damage (editors note: NO CHANCE IN HELL – J is too strong for that!).
Hayley is able to visit at 5 pm QLD time. At which time, I am sure she will keep us all posted.
As Hayley has said, we both believe that the power of positive thoughts and love have reached J. We can not thank you enough for showing your support and love. You have no idea what this will mean to J when she reads all your comments.
More good news, Lexie the spunky Spoodle is BACK! Almost at the same time Hayley was being updated on J, Lexie came from the room and has now eaten three bowls of food and water. Buffy the cat has also been found dramatically hiding under the bed. Those 3 are so connected it’s amazing.
Hayley has made arrangements with the post office so she can pick up mail for J. If you would like the address please send a DM to Hayley or me on twitter @labodydesign/@origazgirl or leave a comment here with your email address. Only cards & letters, no packages please. Remember it has to fit in the box! HA~!
Like so many others, Hayley and I have breathed a huge sigh of relief yet we know J has a lot of work to do before she is 100%. Keep sending her positive thoughts, love, and energy!
It’s a good day!
(WE LOVE YOU J!!!)
Update January 21, 8.00pm (AUS time)/January 21, 1 am (posted by Hayley on J’s blog):
It’s been a LONG day. I was allowed only 2 x 15 minute visits with J. She was (and remains) in a coma. I spent a painfully long day in the wait room staring through the glass doors into the ICU ward. I did have a nice stranger buy me a meat pie and chocolate milk (J the vegan would be so proud)!
The doctors wanted to take her off ventilation to see if she would breathe on her own because even though the ventilator supplies oxygen, the longer she is on it the higher risk of brain damage (or worse).
The first attempt they tried 6 times with different amounts of time but she didn’t respond at all. They tried again about an hour later and on the second attempt her heart stopped for 39 seconds. Tammy and I didn’t share this yesterday but when she seized then her heart also stopped for 1.39 minutes before she was resuscitated. That was when her lungs gave out and why we were so messy.
She has “died” twice in 2 days now and if she tries it for a 3rd time her sister, Tammy and I have all agreed when the doctors bring her back we will kill her ourselves!
They got her heart rhythm back and stabilized and then she coughed involutarily and began to breathe. She is no longer ventilated but on oxygen still. Her chest films are clear and the doctors still don’t know why her lungs stopped. Her body is responding but involuntarily with reflexes and her EEG is constantly changing.
She remains CRITICAL. As long as she stays in this damn coma the risk of brain damage (or worse) is still very high.
Until she opens her eyes and consciously responds she is not out of the woods and there is no way to know if she will have any brain damage.
PLEASE DON’T STOP SENDING YOUR LOVE. Tammy and I are positive it was everyone’s thoughts that brought her back to us today.
I left her this evening with her iPod stuck in her ears playing messages of love that Tammy and her son recorded and a big mix of her favorite tunes on repeat.
More news as we have it. We are back to waiting.
I need to find her cat now who seems to be missing. Just what I need!!
UPDATE: January 21, 5.00pm QLD time/1/20 – Noon US
Our girl was stubborn. She refused to breathe the first time around. The second time around she took 3 breathes then her heart stopped. The docs gave it one more go and she started breathing & her heart rate is stable. She is still unconscious but breathing on her own is huge!!!! Thank you to everyone for putting J in their thoughts. Also a BIG thank you to Hayley for being so good at keeping me up to date & sane!!! Keeping sending love, strength, prayer, and energy — J still needs our good vibes.
UPDATE: (Hayley posted this on J’s site last night) January 21, 2.00pm AUS time/1/20 – 9 pm US
Hayley is at the hospital and has been able to play her iPod mix for J. J is blinking at the eye test, has good flow to the brain, and body responds to reflex. The docs are uncertain as to why she is still in a coma. At 2 pm they are taking J off the ventilator. To avoid risk of brain damage or her lungs giving out she needs to breathe on her own. She needs to get more oxygen to her brain. POSITIVE THOUGHTS AND LOVE NEEDED NOW!!
UPDATE: (Hayley posted this on J’s site last night) January 20, 8.00pm
Operation Smuggle Spoodle was thwarted by a bitch nurse and didn’t happen.
I went direct to the hospital & spent 15minutes with J. ICU are really strict on family only & I was kicked out when they realized I’m not her sister (I think kissing her gave it away). I am at J’s house now and will go back early tomorrow. I don’t care how many times I get kicked out I’ll keep going back. I told her everyone is thinking of her and waiting for her to get better.
She is still unresponsive, on a ventilator and critical in ICU bed #1. Also a message from her family = no flowers or anything are allowed in ICU so please don’t send them. Her family have already had to give some away and they find that difficult.
I’m absolutely shattered & finding it really hard tonight so going to rest now. Keep checking with Tammy and I for updates. Whoever has the chance to will. Please give both of us your patience as this is very difficult for us both.
Keep J in your thoughts. It’s a very difficult battle she has right now.
Thank you from Tammy and I, and I know J would be saying thank you too.
~Hayley
UPDATE: 1/19/2010 US date (1/20/2010 AUS date): Janelle has had another seizure. She is not responsive and is intubated. This is a critical time prayers, love, and positive thoughts is what she needs! Her friend Clare is taking her beloved dog Lexie to the hospital to be with her.
UPDATE: 1/19/2010 US date (1/20/2010 AUS date): Janelle has responded to pain sensors by movement and opening her eyes approximately 30 minutes ago. She is only responding to pain no verbal communication and immediately back to sleep but it is a positive sign.
UPDATE: 1/19/2010 US date (1/20/2010 AUS date):
They undertook more tests overnight and there has been no further bleeding. The aneurysms have clotted (good outcome) but she is unresponsive to verbal or physical stimuli and in a coma.
She is still listed as critical with no indication of when she may wake. It remains only family allowed with her and her mother and sister are by her. Hayley will arrive late afternoon on Thursday (AUS time).
I got further clarification on the procedure she had to avoid any confusion. Forty minutes were spent undertaking detailed testing. Followed by a 1 hour 50 minute procedure. They did not cut into her brain but rather a vascular procedure where they inserted a coil through an artery in her leg up into her brain into the main aneurysm which was 10.2mm (very large) to clot it and prevent rupture.
There were 3 other smaller aneurysms between 1-3mm discovered and they inserted balloons to clot the aneurysms. They confirmed there was no bleeding into her spinal column.
UPDATE: J did not have a mini stroke it was a brain aneurysm. She is in critical condition and needs LOTS of prayers & positive thoughts!